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Health IT Advances Precision Medicine Health IT Advances Precision Medicine

Health IT Advances Precision Medicine

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Precision medicine creates treatment and prevention strategies that meet patient needs by considering individual variability in their genome, environment, and lifestyle. While precision medicine can revolutionize health care, it requires access to an unprecedented volume and variety of data, and an infrastructure that rapidly brings new discoveries to bear.  Recently, we published an article in the Journal of the American Medical Informatics Association that describes health IT’s vital role in precision medicine based on key insights from a series of ONC projects supporting the Precision...
Standards Beyond the Clinic: Capturing Patient Health Data to Advance Precision Medicine Standards Beyond the Clinic: Capturing Patient Health Data to Advance Precision Medicine

Standards Beyond the Clinic: Capturing Patient Health Data to Advance Precision Medicine

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Does the neighborhood I live in affect my health? How am I going to be able to see the specialist without a car? Can I share blood pressure and blood sugar readings I take at home with my doctor so she can monitor how I’m doing? These critical questions have helped to drive precision medicine research as well as improving care management and coordination. While researchers and providers seek...

PCOR Coordinated Registry Network for Women’s Health Technologies

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ONC recently released results from the Coordinated Registry Network for Women’s Health Technologies project, a collaborative effort conducted with the U.S. Food and Drug Administration (FDA) and National Institutes of Health (NIH) to enable researchers to generate real-world evidence using data that address some women’s health issues. The project’s final report discusses the findings and lessons learned from development and testing of the Women’s Health Technologies Coordinated Registry Network FHIR® Implementation Guide.

PCOR Coordinated Registry Network for Women’s Health Technologies

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ONC recently released results from the Coordinated Registry Network for Women’s Health Technologies project, a collaborative effort conducted with the U.S. Food and Drug Administration (FDA) and National Institutes of Health (NIH) to enable researchers to generate real-world evidence using data that address some women’s health issues. The project’s final report discusses the findings and lessons learned from development and testing of the Women’s Health Technologies Coordinated Registry Network FHIR® Implementation Guide.

Empowering Patients to Advance Precision Medicine, One EHR at a Time

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Electronic health record (EHR) systems store incredibly rich data about individual patients, but historically, individuals have been unable to access this information easily and share it for research. However, use of patients’ data could accelerate scientific discovery and progress toward precision medicine. Permitting patients to connect and share their data with researchers—while maintaining the security and privacy of those data—is just one of the many benefits to the research community of the ONC‘s Cures Act Final Rule released in March 2020.

Clinical Genomics Data for Precision Medicine

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Genomic data—information about the complete set of genes that make up each individual—have the potential to revolutionize healthcare and usher in a new era of precision medicine and scientific discovery. However, there is currently no standard way of presenting genomic data, and the standards for integrating those data with electronic health record (EHR) and other health information technology (IT) systems remain under development.

Sync for Genes and the Precision Medicine Initiative

The Sync for Genes project is designed to pilot-test and demonstrate how genomic data can be used at the point of care and for research.

Standards for Everyday Life: Integrating Emerging Health Data to Advance Precision Medicine

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We know SDOH—the conditions in which people live, learn, work, and play—impact our health, delivery of care, and coordination of services in many ways. However, SDOH data are often captured outside the healthcare setting, and this information is not shared consistently during the course of care. Meanwhile, the increasing use of sensors and wearables provides a unique opportunity to capture “care between care,” allowing patients, caregivers, and clinicians to monitor health status and adjust treatment as needed.

These Genes are on FHIR! Advances in Standardizing Genomics through HL7® FHIR®

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Earlier this year, the Office of National Coordinator for Health Information Technology (ONC), in partnership with National Institutes of Health (NIH), announced the Sync for Genes pilots – an effort to strengthen genomic data sharing that is part of the Precision Medicine Initiative.  As a result of this effort, a set of genomics specifications have […]

The post These Genes are on FHIR! Advances in Standardizing Genomics through HL7® FHIR® appeared first on Health IT Buzz.

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