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PHI Education and News
Should I worry about giving my DNA to labs that do genetic tests? Should I worry about giving my DNA to labs that do genetic tests?

Should I worry about giving my DNA to labs that do genetic tests?

With an October 2023 update due to the 23andMe breach

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The internet has made DNA testing a big global business. In the United States and Europe, millions of people have sent samples of their saliva to commercial labs in the hopes of learning something new about their personal health or lineage. Ancestry.com, 23andMe, MyHeritage, and FamilyTreeDNA are all industry leaders that sell their services online, share test results on websites, and even provide guides on how to find relatives in phone directories or share results on social media. They frequently claim ownership of your genetic information and sell access to their databases to large...
Consumer Interest in Sharing and Accessing Digital Health Data Consumer Interest in Sharing and Accessing Digital Health Data

Consumer Interest in Sharing and Accessing Digital Health Data

An issue brief from the Pew Trust Foundation

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According to a survey from The Pew Charitable Trusts, 81%t of adults surveyed favor improved patient and provider access to health information. More than two-thirds of consumers want their clinicians to share health information that isn't presently required by federal data-sharing policies (Trust, 2021).

HIPAA Helper

Who is Revealing Your Private Medical Information?

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This service from Pro Publica allows a person to search and find out whether your hospital, clinic, pharmacy or health insurer has been named in patient privacy complaints, breaches or violations....
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