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Activation & Engagement

The Guide to Getting & Using Your Health Records

An Office of the National Coordinator published web guide

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This newly published web guide from ONC titled, "The Guide to Getting & Using Your Health Records: The steps, tips, and tools you’ll need to get, check, and use your health record" helps to instruct consumers on how to get their health record from healthcare providers, their rights to those records, and some specific ways in which to get a hold of that information.

HIPAA Access Infographic

An ONC HIPAA Access Poster

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From the HealthIT.Gov website: 

This infographic, titled Your Health Information, Your Rights, was created by the Office of the National Coordinator for Health Information Technology and the U. S. Department of Health and Human Services Office for Civil Rights.

Patient Engagement Playbook

A Health Care Provider Resource from the ONC

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From the HealthIT.gov website:

Use the Patient Engagement Playbook as your guide. The Playbook is an evolving resource for providers, practice staff, hospital staff, and other innovators: a compilation of tips and best practices we’re collecting from providers and health systems like yours.

HIPAA Access and Third Parties

An ONC HIPAA Access Video

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From the HealthIT.Gov website: 

Video 3 – HIPAA Access and Third Parties: Video 3 tells the story of Martin, who would like to share the health information in his medical record with a heart health application on his smartphone.  The video provides information on the right to provide access to a third party, including a mobile application device.  Length 3:16


Health app developers, what are your questions about HIPAA?

A resource from the US Office for Civil Rights

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From the OCR website: 

We are experiencing an explosion of technology using data about the health of individuals in innovative ways to improve health outcomes. Building privacy and security protections into technology products enhances their value by providing some assurance to users that the information is safe and secure and will be used and disclosed only as approved or expected. Such protections are sometimes required by federal and state laws, including the HIPAA Privacy, Security and Breach Notification Rules.

Health Literacy Online

A Guide for Simplifying the User Experience

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From the Health Literacy Online website:

Health Literacy Online is about broadening access to user-friendly health information and services on the web. This research-based guide discusses why and how to design health websites and other digital health information tools for all users, including the millions of Americans who don’t have strong reading or health literacy skills—as well as those who don’t have a lot of time to find, process, and use complex health information.
It’s written for anyone involved in creating online health content, from start to finish—writers and editors, content managers, digital strategists, user experience strategists, web designers, developers, and others. The strategies and tips can also be applied widely across disciplines.

Health Outreach Starter Kit

For Newly Funded Health Centers and New Access Point Grantees

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From the Health Outreach Partners website:

Health Outreach Partners (HOP) is an organization that values all people and strives to make health access a reality for all. We recognize the capacity of outreach in facilitating access to quality health care and social services for underserved populations. To best support health centers that are starting a new outreach program, as well as organizations looking to strengthen their existing outreach efforts, HOP created the Outreach Starter Kit for Health Centers. The Starter Kit contains outreach-related resources all in one place for Newly-Funded Health Centers and New Access Point Grantees. This resource will support you in better understanding outreach and its target populations, planning and implementing your program, hiring and maintaining staff, and demonstrating the business value of outreach.

Invoking Technology to Improve Health

Personal Health Information Transformation

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For the majority of my life, I've been physically active and healthy. Even though I've always had a few extra pounds, I strive to eat healthily and work out often. That didn't stop age and some pandemic laxity from catching up with me. My doctor and I were a little concerned about a couple things at my yearly appointment in December. I made a goal of exercise for January and better eating in 2022.

The AHRQ Question Builder App

Helping patients and caregivers prepare for medical appointments and maximize visit time

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The AHRQ QuestionBuilder app helps patients and caregivers prepare for medical appointments and maximize visit time.

  1. Download the mobile app.
  2. Select or create questions to ask.
  3. Save the questions to a calendar appointment or send them to any email address so that the information is handy during medical visits.*

Conversations for Health

Managing conversations that make a difference in primary care and family settings

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From the Conversations for Health:

The Robert Wood Johnson Foundation (RWJF) funded this series of conversation experiences to understand the impact of simulated role-play conversations, featuring virtual humans, in managing conversations that make a difference in primary care and family settings. RWJF seeks to discover, explore, and learn from cutting-edge ideas with the potential to help build a Culture of Health.

How to Choose the Right UX Metrics for Your Product

Created by Digital Telepathy in collaboration with Google Ventures

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From the GV Library description:

When designing for the web, you can analyze usage data for your product and compare different interfaces in A/B tests. This is sometimes called “data-driven design”, but I prefer to think of it as data-informed design — the designer is still driving, not the data.

HIPAA Access Associated Fees and Timing

An ONC HIPAA Access Video

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From the HealthIT.Gov website: 

Video 2 tells the story of Hannah, who is moving across the country.  At her last visit with her current doctor, Hannah asks to have a copy of her records to take with her.  The video helps explain the associated fees, forms and the time it may take for Hannah to get a copy of her records. 
Length 5:14


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